kporter
New member
- Joined
- Nov 27, 2015
- Messages
- 2
- Reason
- Learn about ALS
- Country
- Uni
- State
- Florida
- City
- naples
hi my name is kay and im seeking some advice as to whether i should purchase a plane ticket and a stay at a hotel to get a diagnosis.
For the past 4 years i convinced myself it was anxiety. Got diagnosed with mitral valve prolapse which is not normally so symptomatic but i was happy with that diagnosis. Now 4 years later i am always fatigued, walking up an incline leaves me winded. I dont want to write an epistle, not the type to overreact just seeking advice as to whether i should get this checked and the best country/state to go to.
Symptoms : Atrophy, very noticeable, people comment all the time, mostly my left side especially my face, my upper left shoulder, when i move my left hand you can see the bones, the left side of my face is sunken. My butt cheeks have diminished.
Twitches/fasciculations : allll the timmeee! my fingers will twitch randomly, my chest muscles twitch the most.
Weakness /fatigue : this is where it gets kinda iffy, i will have a moment where i have to pray to walk from one end of the room to the next, but on other days its not so bad, still weak but not so bad.
My legs : weaker by the day, they burn when i lift them, very specific muscle - my glutes.
Issues swallowing and i fumble my words, i also clear my throat alot, as if im trying to clear mucus from a passage its not suppose to be going down, but its extremely difficult to remove this mucus.
Breathing : i feel like my back muscle just wont allow me to get proper breaths. like i have to force it to expand
other symptoms - foggyness , dizzyness from feeling exhausted, lotsa tummy issues (which i think is from the anxiety) , very bad headaches, blurry vision, inability to focus.
any help would be appreciated. my primary care physician thinks its my mvp, i dont see how that can cause the atrophy. which is my main concern along with the twitching. i use to be very active and these days i can barely do what i use to. the one thing that makes me feel like this is not als is when i wake in the mornings, my symptoms are not so bad, but within an hr i feel like i havent rested in years, i get soooo weaaak it takes alot just to finish my day. yes i can lift my arms and my legs. i can do a jump even tho my legs burn like crazy.
thanks in advance.
thanks
For the past 4 years i convinced myself it was anxiety. Got diagnosed with mitral valve prolapse which is not normally so symptomatic but i was happy with that diagnosis. Now 4 years later i am always fatigued, walking up an incline leaves me winded. I dont want to write an epistle, not the type to overreact just seeking advice as to whether i should get this checked and the best country/state to go to.
Symptoms : Atrophy, very noticeable, people comment all the time, mostly my left side especially my face, my upper left shoulder, when i move my left hand you can see the bones, the left side of my face is sunken. My butt cheeks have diminished.
Twitches/fasciculations : allll the timmeee! my fingers will twitch randomly, my chest muscles twitch the most.
Weakness /fatigue : this is where it gets kinda iffy, i will have a moment where i have to pray to walk from one end of the room to the next, but on other days its not so bad, still weak but not so bad.
My legs : weaker by the day, they burn when i lift them, very specific muscle - my glutes.
Issues swallowing and i fumble my words, i also clear my throat alot, as if im trying to clear mucus from a passage its not suppose to be going down, but its extremely difficult to remove this mucus.
Breathing : i feel like my back muscle just wont allow me to get proper breaths. like i have to force it to expand
other symptoms - foggyness , dizzyness from feeling exhausted, lotsa tummy issues (which i think is from the anxiety) , very bad headaches, blurry vision, inability to focus.
any help would be appreciated. my primary care physician thinks its my mvp, i dont see how that can cause the atrophy. which is my main concern along with the twitching. i use to be very active and these days i can barely do what i use to. the one thing that makes me feel like this is not als is when i wake in the mornings, my symptoms are not so bad, but within an hr i feel like i havent rested in years, i get soooo weaaak it takes alot just to finish my day. yes i can lift my arms and my legs. i can do a jump even tho my legs burn like crazy.
thanks in advance.
thanks