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Old 11-28-2015, 12:41 AM #4 (permalink)
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♥ lgelb lgelb is offline
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Interest: I lost a loved one to ALS/MND.
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♥ lgelb lgelb is offline
Extremely Helpful Member

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lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,174
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: i think i have it, in a country where i cant get an emg test.

You might see a clinical geneticist. There are connective tissue disorders that cause MVP and the kinds of symptoms you mentioned, including atrophy. You can find a genetics clinic at academic medical centers.

Best,
Laurie
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