Pmontgomery1
Member
- Joined
- Oct 6, 2015
- Messages
- 13
- Reason
- Other
- Country
- US
- State
- tn
- City
- Antioch
Hello All.
I honestly can't believe I'm posting here again. I would have posted in my old thread, but it's closed now. I had an EMG/NCV on all my limbs, and have been cleared of ALS. BUT! My face, and tongue were not tested, and I now fear Bulbar ALS. Here are my symptoms: I feel like I am having a difficult time speaking. Nobody else notices it, and it isn't a "slur," Its like I am stumbling for words sometimes. My tongue twitches sometimes (I can feel it. Like a pop sensation) I can also feel this sensation in my throat. I can feel a "Pulse" beat in the roof of my mouth with my tongue and finger sometimes. I have neck pain when I chew. Its the muscles in the back of my neck. I know there aren't any chewing muscles there, but It still concerns me greatly. I'm starting to have breathing problems again. That started a few weeks ago, but subsided. I chalked it up to anxiety, but it started back this morning. Swallowing is fine, as of now, but I fear that will go soon. I realize you all aren't Docs, but I know you all know ALS. What are your thoughts about potential Bulbar Onset? Just as a reminder. I'm a African American male, that just turned 31 back in August. I know that ALS is rare, and most people that I have seen on this forum, seemed to start with limb onset. Is bulbar more rare? Thank you for your time.....
I honestly can't believe I'm posting here again. I would have posted in my old thread, but it's closed now. I had an EMG/NCV on all my limbs, and have been cleared of ALS. BUT! My face, and tongue were not tested, and I now fear Bulbar ALS. Here are my symptoms: I feel like I am having a difficult time speaking. Nobody else notices it, and it isn't a "slur," Its like I am stumbling for words sometimes. My tongue twitches sometimes (I can feel it. Like a pop sensation) I can also feel this sensation in my throat. I can feel a "Pulse" beat in the roof of my mouth with my tongue and finger sometimes. I have neck pain when I chew. Its the muscles in the back of my neck. I know there aren't any chewing muscles there, but It still concerns me greatly. I'm starting to have breathing problems again. That started a few weeks ago, but subsided. I chalked it up to anxiety, but it started back this morning. Swallowing is fine, as of now, but I fear that will go soon. I realize you all aren't Docs, but I know you all know ALS. What are your thoughts about potential Bulbar Onset? Just as a reminder. I'm a African American male, that just turned 31 back in August. I know that ALS is rare, and most people that I have seen on this forum, seemed to start with limb onset. Is bulbar more rare? Thank you for your time.....