LifeEnthusiast
Distinguished member
- Joined
- Apr 13, 2015
- Messages
- 336
- Reason
- DX MND
- Diagnosis
- 04/2015
- Country
- CA
- State
- Canada
- City
- Somewhere In
Hi all,
I don't go back to the neuro until my next scheduled visit in December. I was told to get in contact sooner if I experience any worsening breathing or swallowing issues. Breathing I feel has decline some, particularly when eating, but not remarkably and not enough to warrant an earlier appointment in my opinion.
However, fatigue has become a massive obstacle. Does anyone have any suggestions in relation to fatigue? I'm not bouncing back at all. I think this damn move has done me in. In the last week, I feel like my progression has sped up substantially. So much so, it's scary.
Any tips on overcoming this fatigue? Energy drinks? Anything? I'm living alone so I need to get a grip on this. I have been so determined to fly out in November to see friends I left behind in June, but honestly, the way I feel right now the thought of travelling overwhelms me.
I can't seem to get comfortable anymore. I feel so damn stiff and weak all the time and my twitching butt cheek is driving me mental. I feel like I'm riding a horse while watching the telly. I'm assuming this is related to fatigue and if I can address that issue, it might has a positive effect on the others.
Sorry to sound so whiny. Any help is appreciated.
Thanks,
Cee
I don't go back to the neuro until my next scheduled visit in December. I was told to get in contact sooner if I experience any worsening breathing or swallowing issues. Breathing I feel has decline some, particularly when eating, but not remarkably and not enough to warrant an earlier appointment in my opinion.
However, fatigue has become a massive obstacle. Does anyone have any suggestions in relation to fatigue? I'm not bouncing back at all. I think this damn move has done me in. In the last week, I feel like my progression has sped up substantially. So much so, it's scary.
Any tips on overcoming this fatigue? Energy drinks? Anything? I'm living alone so I need to get a grip on this. I have been so determined to fly out in November to see friends I left behind in June, but honestly, the way I feel right now the thought of travelling overwhelms me.
I can't seem to get comfortable anymore. I feel so damn stiff and weak all the time and my twitching butt cheek is driving me mental. I feel like I'm riding a horse while watching the telly. I'm assuming this is related to fatigue and if I can address that issue, it might has a positive effect on the others.
Sorry to sound so whiny. Any help is appreciated.
Thanks,
Cee