Thelights
Active member
- Joined
- Jun 10, 2015
- Messages
- 41
- Reason
- Learn about ALS
- Country
- AUS
- State
- QLD
- City
- Brisbane
Hello again all.
3 months ago i had my appointment with a neuro that specialises in e.m.g in a hospital of brisbane city.
The moment he did a brief examination of me and asked my history he immediatley told me he doesn't thinks its als.
He still went ahead with more blood tests and reflex tests e.t.c babinski and other reflex tests.
All came normal .
I mentioned specifically that i was having issues with my feet and walking felt like a "near limp"
A doctor and physio checked me over and the physio was the only one that noticed a slight bit of weakness but not enough to call it profund and when i did a push up for her i showed her that it triggered fasciculations.
Im not sure if that had been taken into consideration in the end evaluation or not .
I finally had the ncv to which the neuro told me i have "super nerves" and the e.m.g came up clear .
He told me that my issue was anxiety and that i should follow this up with my psychologist . I showed him my hypothenar on my right hand and the fact that it always twitches when clenching a lose fist.
He dictated the report to the telephone and when i asked him to explain my issues he pretty much just said anxiety and i felt like he wanted me out of the office.
I went home with some relief but at the same time some skepticism.
A few weeks later the report arrived and i looked over it . The report mentioned that the rhunatologist had sent me to the hospital with a als diagnosis. The neuro explained that there was nothing organic wrong with me (heres the part that pisses me off) he said i RARELY have twitching in my hypothenar .
At this time inof course still have cramp pains , shakiness , tiredness and the twitching persists . The twtiching seems to have settled more in my right leg , which is the limb that is causing me the most issues .
Mentally i am currently feeling better , but I am now more annoyed as the health issues persist. As i have been given the clear by the neuro i now feel as though people expect me to (have a cup of concrete and harden the f*ck up) this frustrates me as i would more than love to jump back into my old hobbies .
During this time i have tried accupressure to help me which yeilded no result. It has however freaked me out more because the lady that was doing it needs to touch my feet and my big toe has flicked up . I have gone to a new doctor and asked him to reproduce the reflex test and my feet netiher go up or down . However im having further difficulty and co-ordination problems progressivley. If i curl my toes down i begin to cramp on the bottoms of my feet .
After seeing the new doctor he has told me I do have something organic going on and that he ( im back here again) thinks its my thyroid . - i have antibodies against my thyroid and its clinically subacute via ultrasound- he told me that my throid will die soon but my thyroids been like this for some time .
When i asked him about my big toes flicking up and if there can be anomalies he said yes ..
To summarise my issues
Twtiching all over but has been more consistent in right leg past week
Myclonus -leg jerks , arm and head jerks
Cramps all over hands back under shoulder blades feet
Shakiness
Tiredness
Weakness
Uncoordination
Potential babinski
I have scheduled an appointment with another neuro for december as a second opinion. In the mean time doc will send me to endocrinologist.
This clearly doesnt sound like als as i have had a clean e.m.g
What about pls . I should also mention that when i had my thyroid checked i had the ultrasound person take a look at my left shoulder that has bursitis and my feet .. apparantley my feet are borderline plantar fascitis .. does mnd have muscle inflammation as a symptom . Thr neuro said that thyroid can have a direct effect on neurological functions _ i cant see that being the caralyst of a babinski response_
What other things/disease relate to a present babinski sign .
Thank you once again for taking the time to read and answer my speel.
3 months ago i had my appointment with a neuro that specialises in e.m.g in a hospital of brisbane city.
The moment he did a brief examination of me and asked my history he immediatley told me he doesn't thinks its als.
He still went ahead with more blood tests and reflex tests e.t.c babinski and other reflex tests.
All came normal .
I mentioned specifically that i was having issues with my feet and walking felt like a "near limp"
A doctor and physio checked me over and the physio was the only one that noticed a slight bit of weakness but not enough to call it profund and when i did a push up for her i showed her that it triggered fasciculations.
Im not sure if that had been taken into consideration in the end evaluation or not .
I finally had the ncv to which the neuro told me i have "super nerves" and the e.m.g came up clear .
He told me that my issue was anxiety and that i should follow this up with my psychologist . I showed him my hypothenar on my right hand and the fact that it always twitches when clenching a lose fist.
He dictated the report to the telephone and when i asked him to explain my issues he pretty much just said anxiety and i felt like he wanted me out of the office.
I went home with some relief but at the same time some skepticism.
A few weeks later the report arrived and i looked over it . The report mentioned that the rhunatologist had sent me to the hospital with a als diagnosis. The neuro explained that there was nothing organic wrong with me (heres the part that pisses me off) he said i RARELY have twitching in my hypothenar .
At this time inof course still have cramp pains , shakiness , tiredness and the twitching persists . The twtiching seems to have settled more in my right leg , which is the limb that is causing me the most issues .
Mentally i am currently feeling better , but I am now more annoyed as the health issues persist. As i have been given the clear by the neuro i now feel as though people expect me to (have a cup of concrete and harden the f*ck up) this frustrates me as i would more than love to jump back into my old hobbies .
During this time i have tried accupressure to help me which yeilded no result. It has however freaked me out more because the lady that was doing it needs to touch my feet and my big toe has flicked up . I have gone to a new doctor and asked him to reproduce the reflex test and my feet netiher go up or down . However im having further difficulty and co-ordination problems progressivley. If i curl my toes down i begin to cramp on the bottoms of my feet .
After seeing the new doctor he has told me I do have something organic going on and that he ( im back here again) thinks its my thyroid . - i have antibodies against my thyroid and its clinically subacute via ultrasound- he told me that my throid will die soon but my thyroids been like this for some time .
When i asked him about my big toes flicking up and if there can be anomalies he said yes ..
To summarise my issues
Twtiching all over but has been more consistent in right leg past week
Myclonus -leg jerks , arm and head jerks
Cramps all over hands back under shoulder blades feet
Shakiness
Tiredness
Weakness
Uncoordination
Potential babinski
I have scheduled an appointment with another neuro for december as a second opinion. In the mean time doc will send me to endocrinologist.
This clearly doesnt sound like als as i have had a clean e.m.g
What about pls . I should also mention that when i had my thyroid checked i had the ultrasound person take a look at my left shoulder that has bursitis and my feet .. apparantley my feet are borderline plantar fascitis .. does mnd have muscle inflammation as a symptom . Thr neuro said that thyroid can have a direct effect on neurological functions _ i cant see that being the caralyst of a babinski response_
What other things/disease relate to a present babinski sign .
Thank you once again for taking the time to read and answer my speel.