- Joined
- Feb 23, 2014
- Messages
- 2,636
- Reason
- Lost a loved one
- Diagnosis
- 01/2014
- Country
- US
- State
- NC
- City
- Littleton
I've hesitated about posting this just yet because I'm not sure that I know what to do with the thoughts and emotions that it's caused me.
At our last clinic appt, D r Bedlack told us that because of a recent ALS Untangled review on Celiac Disease, he is now testing everyone for it when they come in. I see there is an old story about a man with Celiac being misdiagnosed with ALS, and a fairly recent Isralie study indicates a possible connection. We learned halfway through Kansas that Matt's lab results indicate possible Celiac Disease; the only way for positive diagnosis is a biopsy of his lower intestine. He'll be having that done as soon as we can get it scheduled upon our return home.
Apparently, Celiac Disease can cause neurologic damage like ALS.
Here's where I've been trying to keep a real tight reign on my heart. I had about two hours of euphoria where I remembered what HOPE felt like.
Then I came back to earth. This is a VERY long shot and I don't want to have to experience having hope dashed, so I THINK I've filed it under the heading of "this could prove to be interesting".
At our last clinic appt, D r Bedlack told us that because of a recent ALS Untangled review on Celiac Disease, he is now testing everyone for it when they come in. I see there is an old story about a man with Celiac being misdiagnosed with ALS, and a fairly recent Isralie study indicates a possible connection. We learned halfway through Kansas that Matt's lab results indicate possible Celiac Disease; the only way for positive diagnosis is a biopsy of his lower intestine. He'll be having that done as soon as we can get it scheduled upon our return home.
Apparently, Celiac Disease can cause neurologic damage like ALS.
Here's where I've been trying to keep a real tight reign on my heart. I had about two hours of euphoria where I remembered what HOPE felt like.
Then I came back to earth. This is a VERY long shot and I don't want to have to experience having hope dashed, so I THINK I've filed it under the heading of "this could prove to be interesting".