Hate to admit im back..

[ironmike]

Hello everyone. This is Mike. I came here with questions regarding my symtoms about a year and a half ago. Since then I went to my Neurologist here in Phx Dr Ortega to have a EMG done and a NCV. The results were fine and I was able to put my mind at ease. Secondly after talking with some of you I realized worrying got me nowhere. I had that EMG done in June 14 and had another done previously in the later part of 2013 again all was good. My concern is this. My symptoms have gotten worse over the last year in regards to body cramping mainly hands feet and arms, body wide twitching, tremors, and fatigue to the point that its hard to function and sleep. I have very little atrophy in my right foot around toes and on my left hand near thumb area. The last 2 weeks is what got me concerned my twitching, cramping and pain is out of control. I have 3 wonderful kids, a beautiful wife and 6 businesses. So I try to keep my mind of this but it is hard. My question is this if my symptoms started 3 years ago and 2 emgs were clean could there still be that possibility of a MND? What do you recommend? Just a side note, I have no immobilities and can perform everyday activities. I appreciate your help.

 

[Atsugi]

Your odds of getting ALS are the same as anybody in the general population. Not too worry about ALS.

See your doctor about those symptoms.

 

[lgelb]

MND? Not with what you describe.

I would see a rheumatologist and/or an infectious disease specialist if everything truly has been progressive with no breaks. There are other diseases that could explain these symptoms, but the good news is that they are not affecting your daily function. So what you are probably after is a few more ruleouts and then some symptom relief.

 

[Dusty7]

"twitching, cramping and pain" does not sound like ALS. 2 clean EMGs (and presumably clinical exams) strongly points away from ALS. I agree with Laurie's recommendations. Stop thinking ALS.

 

[ironmike]

Hey guys thanks for you responses. I just wanted to clarify that the emg was in 2014 and 2013 approx 1 year and 3 months ago. I dont know if that changes your responses or not. I am not sure if you will respond to this or not so I would like to leave you all with this. Your help and concern for people that are unsure and scared about what is going on with them is pretty amazing considering your situations. I will say that not everyone that comes to this site is crazy or looking for something they dont have. I am personally grateful for you folks after reading some of your responses to people such as myself that are in the unknown as to what is going on with their health. I pray that all the research regarding stem cell and other medical options come to fruition quickly. Again thank you all for your help and I will do my part with my companies to make donations to help the cause in finding a cure for ALS. Thanks Mike

 

[Atsugi]

IRONMIKE wrote: "the emg was in 2014 and 2013 approx 1 year and 3 months ago. I dont know if that changes your responses or not."

You didn't describe symptoms of ALS. Those of us who deal personally with the disease understand the nuances of the symptoms which are not described well on the Internet. You don't have ALS.

For perspective, note that the people who answered your concerns in 2013 are dead.

--Mike