Electric
New member
- Joined
- Sep 4, 2015
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- California
- City
- Fremont
Hello everyone,
I want to thank you for reading my post. My mother passed from ALS a few years ago as I am well aware of the personal nature of this devestating, life altering disease.
I am not scared. I am not looking to fuel or extinguish my fears. I am only posting to release my concerns; to say out loud what has not been properly explained by my doctor.
I purchased a pair of sandals in the mall maybe four years ago and no sooner had I purchased them I found my left foot wasn't able to lift the sandal from the toes properly and the sandal would slip off. Only by clubbing my toes downward can I hold the sandal in place. To this day I continue with this minor inconvienence. There appears to be no progression with this issue.
Two years ago I began twitching all over. I requested an EMG and it came out clean. There still is twitching but not as prominent. I have noticed twitching in multiple spots in the same major muscle. Twitching throughout my calf and throughout my tricep.
Last December my right hand lost grip strength for a day. It was textbook ALS weakness. I could barely hold a key and it took all I had to open a lock. I had difficulty with the buttons on my raincoat; trouble with turning bolts and trembling etc. On my way home from work my strength returned in full.
During this time I also noticed only with strain could I open a water bottle with my left hand. This persisted for about a month or so. I wasn't sure if this struggle with water bottles was subjective only because I don't know if I have ever opened water bottles with my left hand before. Only when my strength returned was I sure it was weakness I experienced. I did have another EMG on my left hand. The Doctor zapped me and I rinsed in hot water repeatedly until the abnormal readings were normal. After that visit my left hand has been completely normal.
More recently I have experienced a soreness or weakness just above the left knee that has resulted in a slight limp that lasted a couple days. And again a limp a week later that was short lived.
I know twitching is nothing to worry about. I am also aware ALS is progressive. I ask you to discern my symptoms with an open mind. Again I thank you for your time and I keep you in my prayers.
I want to thank you for reading my post. My mother passed from ALS a few years ago as I am well aware of the personal nature of this devestating, life altering disease.
I am not scared. I am not looking to fuel or extinguish my fears. I am only posting to release my concerns; to say out loud what has not been properly explained by my doctor.
I purchased a pair of sandals in the mall maybe four years ago and no sooner had I purchased them I found my left foot wasn't able to lift the sandal from the toes properly and the sandal would slip off. Only by clubbing my toes downward can I hold the sandal in place. To this day I continue with this minor inconvienence. There appears to be no progression with this issue.
Two years ago I began twitching all over. I requested an EMG and it came out clean. There still is twitching but not as prominent. I have noticed twitching in multiple spots in the same major muscle. Twitching throughout my calf and throughout my tricep.
Last December my right hand lost grip strength for a day. It was textbook ALS weakness. I could barely hold a key and it took all I had to open a lock. I had difficulty with the buttons on my raincoat; trouble with turning bolts and trembling etc. On my way home from work my strength returned in full.
During this time I also noticed only with strain could I open a water bottle with my left hand. This persisted for about a month or so. I wasn't sure if this struggle with water bottles was subjective only because I don't know if I have ever opened water bottles with my left hand before. Only when my strength returned was I sure it was weakness I experienced. I did have another EMG on my left hand. The Doctor zapped me and I rinsed in hot water repeatedly until the abnormal readings were normal. After that visit my left hand has been completely normal.
More recently I have experienced a soreness or weakness just above the left knee that has resulted in a slight limp that lasted a couple days. And again a limp a week later that was short lived.
I know twitching is nothing to worry about. I am also aware ALS is progressive. I ask you to discern my symptoms with an open mind. Again I thank you for your time and I keep you in my prayers.