MarciaA
Distinguished member
- Joined
- Mar 13, 2006
- Messages
- 118
- Reason
- PALS
- Country
- US
- State
- MN
- City
- Owatonna
Hey there Beebe!
Yep, still teaching. I haven't heard an update about Gail for quite a while. It sounds like Jack is sort of where Kathy is. She got her feeding tube this last fall...uses it mostly for supplemental liquids and I think some meds that are too big to swallow. She still eats okay on her own. Before her peg procedure, her FVC was at 47%. She has a bipap, but hates it. She can't seem to find a mask that fits properly so it either slips during the night or makes farting noises. Also, if she has a coughing attack, she can't get the mask off and has to try to wake up her husband. I'm hoping that we can find a mask that works, because I'm sure she's not getting the oxygen that she needs (nor is she getting rid of the carbon dioxide). It's good to be back on the forum. I hope to keep in touch more now!
Marcia
Yep, still teaching. I haven't heard an update about Gail for quite a while. It sounds like Jack is sort of where Kathy is. She got her feeding tube this last fall...uses it mostly for supplemental liquids and I think some meds that are too big to swallow. She still eats okay on her own. Before her peg procedure, her FVC was at 47%. She has a bipap, but hates it. She can't seem to find a mask that fits properly so it either slips during the night or makes farting noises. Also, if she has a coughing attack, she can't get the mask off and has to try to wake up her husband. I'm hoping that we can find a mask that works, because I'm sure she's not getting the oxygen that she needs (nor is she getting rid of the carbon dioxide). It's good to be back on the forum. I hope to keep in touch more now!
Marcia