Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,385
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
I copied this from a post in another group
PLS study, at Mass General in Boston, Dr. Paganoni recently received the Virginia Sweeney Fellowship to study PLS from the Spastic Paraplegia Foundation. MGH is one of a few facilities in the world to do a combined MRI-PET scan. They have been doing scans of healthy volunteers vs ALS patients for a number of years now. These scans produce ultra high definition of the brain images and they have seen inflammation in those patients with ALS. They believe this inflammation may be the cause and if they can eliminate or reduce it through medication they will be able to monitor it through these scans. MGH has received a grant to expand these scans to PLS and will be comparing the images vs the two previous groups. The study includes up to 5 (90 minute scans) over three years plus physical and mental examinations. I am the sixth PLS patient to participate with 3-4 more signed up. MGH reimburses for the room and they give you $150 for each scan. The scans are done at their imaging center in Charlestown, MA . It's a beautiful facility and parking is easy and accessible. The total time at the imaging center is about 4 hours a visit They need more volunteers, so If you are interested in participating, you can contact Paul Michael Cernasov 617-726-1880 or [email protected]
PLS study, at Mass General in Boston, Dr. Paganoni recently received the Virginia Sweeney Fellowship to study PLS from the Spastic Paraplegia Foundation. MGH is one of a few facilities in the world to do a combined MRI-PET scan. They have been doing scans of healthy volunteers vs ALS patients for a number of years now. These scans produce ultra high definition of the brain images and they have seen inflammation in those patients with ALS. They believe this inflammation may be the cause and if they can eliminate or reduce it through medication they will be able to monitor it through these scans. MGH has received a grant to expand these scans to PLS and will be comparing the images vs the two previous groups. The study includes up to 5 (90 minute scans) over three years plus physical and mental examinations. I am the sixth PLS patient to participate with 3-4 more signed up. MGH reimburses for the room and they give you $150 for each scan. The scans are done at their imaging center in Charlestown, MA . It's a beautiful facility and parking is easy and accessible. The total time at the imaging center is about 4 hours a visit They need more volunteers, so If you are interested in participating, you can contact Paul Michael Cernasov 617-726-1880 or [email protected]