twitchy23
Member
- Joined
- Dec 10, 2014
- Messages
- 23
- Reason
- Learn about ALS
- Country
- US
- State
- FL
- City
- Fort Lauderdale
Hello, I am sorry to be back. I visited the other thread I opened, and it was closed, so I am starting this one.
https://www.alsforums.com/forum/do-i-have-als-als/27574-various-questions-regards-als.html
Not sure if some of you remember me...although I've been away, I haven't forgotten any of you.
I am reaching out because I came far...pretty far in my physical and mental treatment and was doing well....until I fell down the stairs during the weekend.
Since I've posted:
The left/neck shoulder has gotten worse, but I was EMG´d in my shoulder and forearm and also had an SEP test on that side, and it was OK. I am in physiotherapy for it, and the weakness seems to have gotten a bit better, but the pain is still around. Potentially a cervical facet joint or herniation problem.
My left leg issues came back, where my leg felt heavy and clumsy. I fell down the stairs. Did not hurt anything further, but it was a bad fall. Lots of bruises. This threw me back to point ZERO in my anxiety. I kept thinking that it was my left leg that missed something. Today at the neuro, he did a complete strength and reflex test and I was OK.
Question #1 for opinions: If I fell, and it was due to something neurological in my leg, do you think the Professor Neurologist have found it in a strength and reflex test?
Also, the Ganglion cyst which was supposedly causing my right hand weak grip and atrophy, is gone, and my hand/arm healed...but the weak grip and atrophy is still there. This is my main concern right now. Some points and then 3 more questions for opinions:
The grip feeling/progression in my right hand started over a year ago. It is still just within the grip space (between first finger and thumb on dorsal side). Did not spread to any other points, nor has it gotten worse, just kinda stayed constant after a certain point. Thenar is full, no change. I have full strength and normal reflex in the neuro clinical test. Neuro acknowledged the shrinkage, but does not feel it is typical MND shrinkage. The sunken area is more around my thumb joint and in the anatomical snuff box. My surgery went well, healing went well, no problems. As the shrinking was progressing last year, I had all sorts of sensory issues like pain, pulsating, tingling. I do not have any twitching in this hand. Maybe like 2 per day, like as in any other part of my body.
I am getting the EMG of my hand next week on Wednesday for the first time and I am freaking out.
Last 4 questions:
I appreciate everyone's time and thoughts to help me.
https://www.alsforums.com/forum/do-i-have-als-als/27574-various-questions-regards-als.html
Not sure if some of you remember me...although I've been away, I haven't forgotten any of you.
I am reaching out because I came far...pretty far in my physical and mental treatment and was doing well....until I fell down the stairs during the weekend.
Since I've posted:
The left/neck shoulder has gotten worse, but I was EMG´d in my shoulder and forearm and also had an SEP test on that side, and it was OK. I am in physiotherapy for it, and the weakness seems to have gotten a bit better, but the pain is still around. Potentially a cervical facet joint or herniation problem.
My left leg issues came back, where my leg felt heavy and clumsy. I fell down the stairs. Did not hurt anything further, but it was a bad fall. Lots of bruises. This threw me back to point ZERO in my anxiety. I kept thinking that it was my left leg that missed something. Today at the neuro, he did a complete strength and reflex test and I was OK.
Question #1 for opinions: If I fell, and it was due to something neurological in my leg, do you think the Professor Neurologist have found it in a strength and reflex test?
Also, the Ganglion cyst which was supposedly causing my right hand weak grip and atrophy, is gone, and my hand/arm healed...but the weak grip and atrophy is still there. This is my main concern right now. Some points and then 3 more questions for opinions:
The grip feeling/progression in my right hand started over a year ago. It is still just within the grip space (between first finger and thumb on dorsal side). Did not spread to any other points, nor has it gotten worse, just kinda stayed constant after a certain point. Thenar is full, no change. I have full strength and normal reflex in the neuro clinical test. Neuro acknowledged the shrinkage, but does not feel it is typical MND shrinkage. The sunken area is more around my thumb joint and in the anatomical snuff box. My surgery went well, healing went well, no problems. As the shrinking was progressing last year, I had all sorts of sensory issues like pain, pulsating, tingling. I do not have any twitching in this hand. Maybe like 2 per day, like as in any other part of my body.
I am getting the EMG of my hand next week on Wednesday for the first time and I am freaking out.
Last 4 questions:
- Does this sound like how ALS atrophy would progress?
- Do any of you think I should be worried about the EMG results, based on the above?
- Is it a good sign that my hand healed ok (example: if ALS were in my hand, do you think I would have had problems healing (like, my hand is functional to how it was before)?
- How
I appreciate everyone's time and thoughts to help me.