Al
Moderator emeritus
- Joined
- May 25, 2004
- Messages
- 8,083
- Reason
- PALS
- Diagnosis
- 10/2003
- Country
- CA
- State
- On
- City
- NW of Toronto
I think that the diagnosis of ALS is not an exact science. Some people present with certain symptoms and have read on the internet that they probably have ALS or some other MND. They become convinced the doctor is a quack (which some are) but there can't be that many BAD Neurologists. Statistically speaking the medical schools can't be turning out that many idiots. The problem lies in the disease itself. I think that the disease must mutate among different people. How else can you explain someone who dies in 6 months and someone else walking with a walker 6 years later. That is with no REAL treatment. If you get cancer or heart disease and get no treatment you will die. With ALS you have no real treatment and it is hard to get a definitive diagnosis because of the variables of the disease. Cancer or heart disease doesn't really have as many variables. Don't distrust your doctor. He just might not be seeing enough to give you a death sentence yet. Give him time. Hopefully you'll have plenty of it.
AL.
AL.