Tidler
New member
- Joined
- Jan 12, 2015
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- New York
- City
- Buffalo
Hey I was just hoping to educate myself a bit because i'm pretty oblivious to this whole thing and to be honest it's scaring the shit out of me. My dad was diagnosed about a month ago now, we were told on Christmas eve when he flew home.
My dad told me he's had a lot of trouble swallowing and the whole thing started in his throat. He described it as choking fits on mucous and phlegm that built up in his throat. He lives in Montana and has since been using a medical marijuanna cream to rub on his neck and he said it clears it right up. The doctors have told him the whole thing appears to be starting in his tongue and throat and hasn't yet had his follow up visit to find out a timeline of what to expect (will be in the next 2 weeks or so).
I'm 23 with a pretty complicated relationship with my dad and i'm trying to figure out what to expect in the coming months. I've done some research online and obviously each case is so unique that i'm hoping to find someone that maybe had a similar beginning to this whole thing. My dads speech has slowed severely since the last time I saw him and he's said that his hand has been giving him problems where he loses control. I don't know the speed of the disease or what to expect the next time I see him.
I spoke to my dad on the phone probably May of 2014 and he sounded completely normal, the next time I spoke to him directly without text or email was August of 2014 and I thought it sounded like he was high or something. His speech was extremely slowed and monotone almost. Hoping just to give you guys an idea of how fast it's gone so far.
The whole thing has been tough for me so far because of how he said it started for him. My dad told me that the first time he felt a certain pain in his arm was when me and him were out in the back yard playing Kan Jam (A local frisbee game) where he threw me the frisbee and grabbed his arm immediately in pain and couldn't play anymore. I remember it happening extremely vividly and he mentioned that it was a kind of pain he's never felt before, he now feels the same pain several times a day.
I know this isn't much to go on, but like I said i'm pretty oblivious to this whole thing. I'm just looking for what to expect from people that have seen or are going through this now. A website that tells me what the symptoms are really aren't doing it for me anymore.
My dad told me he's had a lot of trouble swallowing and the whole thing started in his throat. He described it as choking fits on mucous and phlegm that built up in his throat. He lives in Montana and has since been using a medical marijuanna cream to rub on his neck and he said it clears it right up. The doctors have told him the whole thing appears to be starting in his tongue and throat and hasn't yet had his follow up visit to find out a timeline of what to expect (will be in the next 2 weeks or so).
I'm 23 with a pretty complicated relationship with my dad and i'm trying to figure out what to expect in the coming months. I've done some research online and obviously each case is so unique that i'm hoping to find someone that maybe had a similar beginning to this whole thing. My dads speech has slowed severely since the last time I saw him and he's said that his hand has been giving him problems where he loses control. I don't know the speed of the disease or what to expect the next time I see him.
I spoke to my dad on the phone probably May of 2014 and he sounded completely normal, the next time I spoke to him directly without text or email was August of 2014 and I thought it sounded like he was high or something. His speech was extremely slowed and monotone almost. Hoping just to give you guys an idea of how fast it's gone so far.
The whole thing has been tough for me so far because of how he said it started for him. My dad told me that the first time he felt a certain pain in his arm was when me and him were out in the back yard playing Kan Jam (A local frisbee game) where he threw me the frisbee and grabbed his arm immediately in pain and couldn't play anymore. I remember it happening extremely vividly and he mentioned that it was a kind of pain he's never felt before, he now feels the same pain several times a day.
I know this isn't much to go on, but like I said i'm pretty oblivious to this whole thing. I'm just looking for what to expect from people that have seen or are going through this now. A website that tells me what the symptoms are really aren't doing it for me anymore.