- Joined
- Nov 5, 2009
- Messages
- 14,264
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Hi, Megan,
My husband was born with a genetic disorder and so our son saw him in the hospital many times, decades before we faced ALS.
Your kids will be guided by your approach, so my best first advice is to model however you would have wanted your mom to respond if the same thing had happened w/ your dad.
Whatever you do for them and your husband, whether tackling a problem or enjoying life's simple pleasures and beauty, will help you as well. There are no perfect caregivers, any more than there are perfect husbands or wives. It is indeed arbitrary, who is healthy and who is sick and who dies when. You don't have to accept or find any rationale for what happened at all, but you can live your best lives regardless.
Best,
Laurie
My husband was born with a genetic disorder and so our son saw him in the hospital many times, decades before we faced ALS.
Your kids will be guided by your approach, so my best first advice is to model however you would have wanted your mom to respond if the same thing had happened w/ your dad.
Whatever you do for them and your husband, whether tackling a problem or enjoying life's simple pleasures and beauty, will help you as well. There are no perfect caregivers, any more than there are perfect husbands or wives. It is indeed arbitrary, who is healthy and who is sick and who dies when. You don't have to accept or find any rationale for what happened at all, but you can live your best lives regardless.
Best,
Laurie