worriedJo
New member
- Joined
- Sep 12, 2014
- Messages
- 3
- Reason
- Learn about ALS
- Country
- PT
- State
- Lisbon
- City
- Lisbon
I’m 40 years old.
I'm having a really hard time.
I haven’t shared my fears with anyone, so far.
I have an appointment with a neuro in 2 weeks.
I keep repeating to myself what I've read several times around the forum:
“ALS is about failing, not feeling”... And so far, there is nothing I 'can't do'. I can walk, stand on my toes, button my shirt… But there’s definitely something wrong with me, and I fear it is ALS.
It started back in June/July. Back then it was this feeling of ‘instability’. My legs didn’t feel ‘firm’. They felt week and instable. Sometimes I had these episodes of leg stiffness.
I had a cervical discectomy about a month ago (late August) because spinal compression at C4-C5 and nerve root compression. So far I feel no improvement to the leg symptoms. The leg 'stiffness' is worse. I've heard of several cases of ALS symptoms being confused with cervical myelopathy and I am terribly scared it is my case.
I don't know what to call it (English is not my native language), but my legs feel very 'stiff' most of the time, sometimes the calves, other times the upper back leg... It’s worse on the right leg. I don't think they are leg cramps (I'm not sure about all these 'technical' terms), it feels like my legs are very, very tense, and I can't get them to relax. It eventually becomes painful... My muscles become sore. When it’s worse, the stiffness makes walking difficult and my legs feel weak.
Sometimes I get this ‘tension’/weakness feeling also on my arms, only not so strongly.
Now and then it seems to go away for a while (some hours), last Saturday I just had a really good day, I thought it had gone away… but then it comes back.
Has anybody diagnosed with ALS started with symptoms like these? I’m so scared.
Thank you in advance for the time spent reading my words.
I'm having a really hard time.
I haven’t shared my fears with anyone, so far.
I have an appointment with a neuro in 2 weeks.
I keep repeating to myself what I've read several times around the forum:
“ALS is about failing, not feeling”... And so far, there is nothing I 'can't do'. I can walk, stand on my toes, button my shirt… But there’s definitely something wrong with me, and I fear it is ALS.
It started back in June/July. Back then it was this feeling of ‘instability’. My legs didn’t feel ‘firm’. They felt week and instable. Sometimes I had these episodes of leg stiffness.
I had a cervical discectomy about a month ago (late August) because spinal compression at C4-C5 and nerve root compression. So far I feel no improvement to the leg symptoms. The leg 'stiffness' is worse. I've heard of several cases of ALS symptoms being confused with cervical myelopathy and I am terribly scared it is my case.
I don't know what to call it (English is not my native language), but my legs feel very 'stiff' most of the time, sometimes the calves, other times the upper back leg... It’s worse on the right leg. I don't think they are leg cramps (I'm not sure about all these 'technical' terms), it feels like my legs are very, very tense, and I can't get them to relax. It eventually becomes painful... My muscles become sore. When it’s worse, the stiffness makes walking difficult and my legs feel weak.
Sometimes I get this ‘tension’/weakness feeling also on my arms, only not so strongly.
Now and then it seems to go away for a while (some hours), last Saturday I just had a really good day, I thought it had gone away… but then it comes back.
Has anybody diagnosed with ALS started with symptoms like these? I’m so scared.
Thank you in advance for the time spent reading my words.