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Old 05-21-2003, 12:15 PM #1 (permalink)
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T.Almeida T.Almeida is offline
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Join Date: 2003
Posts: 1
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T.Almeida T.Almeida is offline
New Member (Say Hi)
T.Almeida's Avatar
Join Date: 2003
Posts: 1
T.Almeida is an unknown quantity at this point
Default Hi, I'm from portugal and my daughter has ALS

Dear All,

I am new on this site. I am not canadian. I live in Portugal and i am the daughter of an ALS patient diagnosed in December'02. In Portugal we don't have any association or help regarding this specific disease. Nobody knows about ALS and close relatives and neighbours just stare at us when we tell them what is going on.
My father (62 y) presents a strong progression. In just 7 months he lost the ability to walk, talk and use his hands. He is now totally dependent of my mother who acts as a caregiver.
The last months have been like a nightmare, has we do not have anyone with us to help or advice. However we are working hard on making his days soften then they really are . We are daily facing new difficulties but fortunately we have been able to overcome them all, slowly and step by step.
The hardest is when we try to go out. People are not used to deal with this kind of handicaped people in this country. We are looked in a curious way. Also we do not have the right accessibility for the disabled. However we do not give up on getting my father to look at the sea he loves so much or to have a wheelchair walk in a garden.
We have learned a lot about love and care during the last months. We are now much closer than ever and we try to be always in a good mood. We deal with anger and we turn it into affection.
I would like to send you all a word of hope. My thoughts are with all who are suffering of ALS and also with their families and caregivers.
Teresa
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