Indygal5649
New member
- Joined
- Mar 15, 2014
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- xx
- City
- xx
I'm new here, & I just posted this info in a thread that I can not find now, so this is my 2nd attempt. SIL spent almost all of Jan & Feb in hospital before receiving ALS diagnosis. First problem we noticed was slurred speech which is now almost 100% not understandable. She falls a lot, has a food tube & is on oxygen. Due to all of immediate family being employed & the fact we all live about 30 miles apart, she was placed in nursing home. The problem we are dealing with is that she calls constantly asking to be taken home. She can't go home as she is already very disabled & the home she used to have isn't available for reasons I can't go into here. We (and her doctors) have gently explained that ALS only gets worse & that none of us can stop working to be with her 24 hours a day. She continues to call & ask someone to help her get out of the nursing home. We just don't know how to deal with her non-acceptance of this new & horrible reality. Have any of you had similar experience & can offer some advice? It is to the point when we visit her at the NH we can't have regular conversations with her because of all the requests to go home. She actually attempted to show us she could walk to the door, but lost balance & fell back into the wheel chair. She just doesn't seem to accept this & we don't know what to do. Thank you.