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Old 10-11-2007, 11:49 AM #11 (permalink)
Kewanee Kewanee is offline
New Member
 
Join Date: 2007
City: Skowhegan
State: New England
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 35
Kewanee is on a distinguished road
Kewanee Kewanee is offline
New Member
Join Date: 2007
City: Skowhegan
State: New England
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 35
Kewanee is on a distinguished road
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Quote:
Originally Posted by scared of als View Post
I mean how many doctors need to tell me its not als? Especially when the als doc said he didnt think so either. I still feel i have this disease, I went as far as calling him yesterday and he returned my call and told me to stop obsessing about this disease. He is checking my potassium channel and lymes. Ive had so many members on here help me and i appreciate that so much you dont even no! iam driving my hubby nuts But this is so scary regardless if its hust twitching so far for 5 months nothing else, ive read on here about members on here who twitched for a year then got the weekness well one member did. I have weared vibrating movement in my right leg and foot that is constant and pulsating ear thing now. I do no anxiety can do a lot but come on twitch twitch twicth even when iam laughing or happy just doesnt add up.now i feel twitches in my tounge and think iam sluring my words like when i say shower ill say tower. Iam almost positive ill be here from a year from now saying yep i got als. thanks jenny
So many neurological disorder share the same symptoms that it makes it difficult and of course we fear the one that could be fatal.

MS, Lupus and even Sjogrens Syndrome can have these symptoms when affecting the nervous system. Generalized or other DYSTONIA'S can start this way. I would think if you live in an area that has a movement disorder specialist it may be worth the trip.
Of course they are neuro's who specialize in movement disorders that many don't even know about, such as the Dystonia's. Only a handful really know about them.
Have you been on the sites Dystonia Medical Research Foundation or WEMOVE?

It may help. I am going through the same fear, especialy with it in my family. Scared silly. Got your pm and didn't even know we had them here. So glad to meet you!
Kewanee
Kewanee is offline