marfan
Member
- Joined
- Jan 3, 2014
- Messages
- 16
- Reason
- Learn about ALS
- Country
- SP
- State
- Madrid
- City
- Torrejon
Hello, i hope all people good here. I have a lots "rare" symptoms, for example vibrating continuosly my feets with twichting in feet, legs, and all body, I have low muscle development because I have Marfan Syndrome and this is of the one characterism of this syndrome (poor muscle development), I feel my mucus grows in my nose (feels like sinusitis), my twitchs are greater in rest, for example when I sleep in the night if I move to change position in the bed if possible to feel twichs ( I take lormetazepam pill for sleep). I feel low weakness in my arm for moving mouse and click the mouse buttons, is not obvious but I feel rare. I went to the neurologist yesterday and she did all test and all fine (include Babinski, Hoffman, strong tests in arms, legs, feet, hands) She saw my tongue etc etc. She saw a twichts in my back. My neurologist thinks is a benign twichs, she orders an EMG for end of February (I think is much time but is Social Security in Spain). Im scare because I think is a ALS bulbar onset. Thanks for reading.