NotALS!
Distinguished member
- Joined
- Aug 28, 2010
- Messages
- 144
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- Other
- Diagnosis
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- Country
- US
- State
- CT
- City
- lyme
I've been diagnosed with ALS 4 times and seen 6 neurologists. I've had 7 EMGs, 3 MRIs, 2 CAT scans, numerous xrays, hundreds of blood tests and taken tons of antibiotics prescribed by 3 of the best known lyme specialists in the country.
I was still deteriorating, shaking and barely breathing at night until I tried IVIG. The results have been remarkable. I am walking a mile a day and most of the dexterity in my hands has returned.
I would encourage anyone with ALS to ask their dr to try IVIG. Its expensive but worth a shot!
I was still deteriorating, shaking and barely breathing at night until I tried IVIG. The results have been remarkable. I am walking a mile a day and most of the dexterity in my hands has returned.
I would encourage anyone with ALS to ask their dr to try IVIG. Its expensive but worth a shot!