cypress
Active member
- Joined
- Nov 6, 2012
- Messages
- 46
- Reason
- PALS
- Diagnosis
- 08/2012
- Country
- US
- State
- Alabama
- City
- Newton
I underwent laser septoplasty yesterday and requested propofol as the anesthetic. Based on my research I expected improvement in my als symptoms. I was not disappointed.
Every symptom improved. I have bulbar onset als. Symptom onset 13 months ago. What was affected most recently showed the greatest improvement. My left leg had been starting to buckle for three days. It is perfect now. Gait had become somewhat spastic, smooth now. Dexterity better all areas. My mouth opens twice as wide. I can smile again. Some words are now quite clear but there are some consonants I still cannot form. My tongue moves much better too. Speech and swallowing are hard to gauge since my nostrils are completely clogged and bleeding.
The effects are going to be temporary, perhaps two weeks. But, there is no reason that this should not be a front line treatment for pals. Follow the propofol thread on als.net for my story(cypress) and there are many abstracts and journal articles sited.
Now onto another drug known as Dihexa. It is a small molecule that passes the bbb and grows new synapses. They would be worth growing with the propofol saving them.
Pals and Cals, propofol is earth shattering for us! Get busy looking into this NOW!
Every symptom improved. I have bulbar onset als. Symptom onset 13 months ago. What was affected most recently showed the greatest improvement. My left leg had been starting to buckle for three days. It is perfect now. Gait had become somewhat spastic, smooth now. Dexterity better all areas. My mouth opens twice as wide. I can smile again. Some words are now quite clear but there are some consonants I still cannot form. My tongue moves much better too. Speech and swallowing are hard to gauge since my nostrils are completely clogged and bleeding.
The effects are going to be temporary, perhaps two weeks. But, there is no reason that this should not be a front line treatment for pals. Follow the propofol thread on als.net for my story(cypress) and there are many abstracts and journal articles sited.
Now onto another drug known as Dihexa. It is a small molecule that passes the bbb and grows new synapses. They would be worth growing with the propofol saving them.
Pals and Cals, propofol is earth shattering for us! Get busy looking into this NOW!