EJTUNow
Member
- Joined
- Mar 25, 2013
- Messages
- 28
- Reason
- Learn about ALS
- Country
- US
- State
- North Carolina
- City
- Carteret
"Praying only is not going to solve the ALS problem. We need to make ourselves heard by the Pharmaceutical industry, the Government, etc., or we are never going to see an effective treatment for this disease, even when not for us, but for the new generations of PALS who are being diagnosed yearly with this disease (about 5,600 in the USA alone)."
- perhaps some very dignified activism during May shareholder meeting?: ask them to apply for breakthrough therapy designation?
Cytokinetics’ Annual Stockholders’ Meeting will be held at the Embassy Suites Hotel located at 250 Gateway Boulevard in South San Francisco, CA 94080 at 1:30 PM on May 22, 2013.
- last year we had one PALS family member who spent 30 minutes talking with all of the executives, including this CEO
- Would anyALS patient turn down CK-2017357
- how about During the ALS Association advocacy day meeting?
If you were an HIV victim or a cancer victim what would you be doing?
- perhaps some very dignified activism during May shareholder meeting?: ask them to apply for breakthrough therapy designation?
Cytokinetics’ Annual Stockholders’ Meeting will be held at the Embassy Suites Hotel located at 250 Gateway Boulevard in South San Francisco, CA 94080 at 1:30 PM on May 22, 2013.
- last year we had one PALS family member who spent 30 minutes talking with all of the executives, including this CEO
- Would anyALS patient turn down CK-2017357
- how about During the ALS Association advocacy day meeting?
If you were an HIV victim or a cancer victim what would you be doing?
