esjcollege08
Member
- Joined
- Mar 4, 2012
- Messages
- 26
- Reason
- Learn about ALS
- Diagnosis
- 12/2012
- Country
- US
- State
- MT
- City
- Nowhere
So I went and had my video esophogram today and the SP noted my swallowing muscles look fine, but that my soft palate has nearly collapsed and does not raise up very much at all when i say, "Ahhh." She believes i was mistaking swallowing problems for a collapsed soft palate - as it has interfered with my eating as well. Have no idea how my neurologists missed this, but I imagine its because everyone keeps dismissing me due to my age and rushing me out of their offices. But now I guess I have evidence that something isn't right with my bulbar region.
My tongue is scalloped up both sides nearly the entire length, my tongue continues to twitch, i have body wide fascics, unsteadiness on feet, and my right pinky/ring finger are weaker than the left (pinching/lateral movement). Lips have really started twitching badly over the past 2 weeks. Still have no problem with liquids/ and no noticeable problems with speech.
Looking for PALS experiences with soft palate. Can soft palate collapse be a presenting symptom?
And just because I know its going to be mentioned, yes, I've seen an ENT and there aren't any physical things that can account for my symptoms (tumors, sinus infection etc), and I have read previous threads on soft palates.
I see ALS clinic on wednesday, just seeing if anyone here has had similar experience.
Thank you very much.
My tongue is scalloped up both sides nearly the entire length, my tongue continues to twitch, i have body wide fascics, unsteadiness on feet, and my right pinky/ring finger are weaker than the left (pinching/lateral movement). Lips have really started twitching badly over the past 2 weeks. Still have no problem with liquids/ and no noticeable problems with speech.
Looking for PALS experiences with soft palate. Can soft palate collapse be a presenting symptom?
And just because I know its going to be mentioned, yes, I've seen an ENT and there aren't any physical things that can account for my symptoms (tumors, sinus infection etc), and I have read previous threads on soft palates.
I see ALS clinic on wednesday, just seeing if anyone here has had similar experience.
Thank you very much.