petlover
Active member
- Joined
- Dec 9, 2012
- Messages
- 59
- Reason
- Learn about ALS
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- US
- State
- UT
- City
- Salt Lake City
Sorry to start a new thread, but I have 2 specific questions for everyone.
As a recap, I was examined by a neurologist last Thursday. I have weakness in my left hand, left foot, and left side of my face. He is referring me to the local ALS clinic for evaluation and testing. My two questions have to do with two separate possible symptoms.
The first is this - around the same time my muscle related problems started (this past summer), I went to an urgent care clinic on a weekend as I had a urinary tract infection. They noticed that my blood pressure was really high. This was unusual, as I have normally had fairly low blood pressure. They advised I have someone check into it, so I went to a family residency clinic. The resident had me keep track of it twice a day for a month. It was all over the place, ranging from quite low (100/60ish) to pretty high (160/120ish). The resident was puzzled, but didn't want to put me on meds as he worried that my lows would get really low.
I didn't think too much about after that, but when I went a few weeks ago to the new GP to whom my friend referred me, it was 165/125. I mentioned to her about the erratic readings during the summer, and she has also asked that I track it for a month. She didn't think it could be related to my muscular issues. When I saw the neurologist though, my BP was only 110/62 or something, so I mentioned it to the PA, who brought up the possibility of autonomic nervous system dysfunction. Does anyone know if that could have anything to do with neuromuscular disorders? I can't find much on it, and I forgot to ask about it again before we left. Should I bring it up at the ALS clinic?
Second question - after the neuro finished examining my mouth and tongue, my teeth started chattering. I thought it was because I was nervous. Then it happened again yesterday after I brushed my teeth, and again last night in bed. I searched the forums here, and saw that several people have issues with teeth chattering, but it sounds like they have had the disease for quite some time. Can this happen early? Or is it more likely to be nerves? Again, not sure if it is relevant to bring up to the specialist. I don't want to sound like some neurotic middle aged woman bringing up every hangnail and pimple, LOL!
Anyway, thanks again for all the patient help from everyone on this board. You guys rock.
_____________________________
Lesa
As a recap, I was examined by a neurologist last Thursday. I have weakness in my left hand, left foot, and left side of my face. He is referring me to the local ALS clinic for evaluation and testing. My two questions have to do with two separate possible symptoms.
The first is this - around the same time my muscle related problems started (this past summer), I went to an urgent care clinic on a weekend as I had a urinary tract infection. They noticed that my blood pressure was really high. This was unusual, as I have normally had fairly low blood pressure. They advised I have someone check into it, so I went to a family residency clinic. The resident had me keep track of it twice a day for a month. It was all over the place, ranging from quite low (100/60ish) to pretty high (160/120ish). The resident was puzzled, but didn't want to put me on meds as he worried that my lows would get really low.
I didn't think too much about after that, but when I went a few weeks ago to the new GP to whom my friend referred me, it was 165/125. I mentioned to her about the erratic readings during the summer, and she has also asked that I track it for a month. She didn't think it could be related to my muscular issues. When I saw the neurologist though, my BP was only 110/62 or something, so I mentioned it to the PA, who brought up the possibility of autonomic nervous system dysfunction. Does anyone know if that could have anything to do with neuromuscular disorders? I can't find much on it, and I forgot to ask about it again before we left. Should I bring it up at the ALS clinic?
Second question - after the neuro finished examining my mouth and tongue, my teeth started chattering. I thought it was because I was nervous. Then it happened again yesterday after I brushed my teeth, and again last night in bed. I searched the forums here, and saw that several people have issues with teeth chattering, but it sounds like they have had the disease for quite some time. Can this happen early? Or is it more likely to be nerves? Again, not sure if it is relevant to bring up to the specialist. I don't want to sound like some neurotic middle aged woman bringing up every hangnail and pimple, LOL!
Anyway, thanks again for all the patient help from everyone on this board. You guys rock.
_____________________________
Lesa