Matt71davis
New member
- Joined
- Jan 13, 2013
- Messages
- 1
- Reason
- Learn about ALS
- Country
- US
- State
- Tx
- City
- Pasadena
I appreciate any advice that the members here can give me. In Sept of 2012 I thought I was coming down with a slight case of the flu. Muscle pains all over and fatigue. These symptoms progressed to widespread twitching, numbness mainly on left side of body, dizziness, strange sensations " like goose bumps " frequently, flaccid muscles all over and weakness on the left side of my body. My GP sent me to a local neuro that did clinical exam, EMG and nerve conduction study. He did find what he termed as minor fasicilation but that everything else looked normal. He said probably a viral infection of the muscles. I followed up with him in a month because my condition had not gotten any better. Weakness had increased slightly and I had atophy on the leftside of my body. Watch and rings no longer fit skin beginning to wrinkle and I could no longer do any exercising. Before my initial episode I was working out and running about 8 miles a week. I explained to him the issues with the left side of my body and that my hands and feet were hurting and felt strange, twitching etc. He performed another exam and confirmed his original diagnosis. This time he stated infective myosotis. A month later my condition had stabilized but I was still not right and my muscles continued to twitch hurt and be very sensitive to even touch. I went for a second opinion with a neuromuscular specialist @ UT Medical Branch in Houston. At my initial appt she reviewed all my records blood test mri's etc. she stated all looked good but she would do her own test. She performed her own clinical strength exam , EMG and nerve conduction test. Her findings were basically the same as my first neuro. All test were within normal ranges and she didn't find anything that would indicate ALS. I want to rely on what the doctors are telling me but my condition continues to worsen. My tounge and mouth are fatigued very easily and I can not walk up the stairs without gasping for air and my chest hurting. I am at a loss as to what I should do. I am only 42 prior to Sept was in very good physical condition. I am looking for advice from anyone that may have had a similar experience. My doctors see most of the symptoms but neither will acknowledge the atrophy that I am now experiencing all over my body. My wife and friends see it but they say it is because I have stopped working out. I am still able to do normal everyday things but lifting objects and even typing is more difficult. Please review and any advice is appreciated.