KJordan78
New member
- Joined
- Oct 20, 2012
- Messages
- 6
- Reason
- CALS
- Diagnosis
- 09/2011
- Country
- US
- State
- Arkansas
- City
- Crossett
My mother in law was diagnosed a little over a yr ago. It started with numbness in her hands and feet. She began tripping and falling. She wore leg braces until that no longer worked. She's now in a powerchair full time. I just don't even know where to start with all the questions and problems we are having. She's on disability from a previous diagnosis of fybromyalgia. So that part was already out of the way. She doesn't qualify for Medicaid, which has SERIOUSLY limited her access to help. That makes no sense to me at all. She has home health available for 1 hour twice a week. Which is basically no help. We are all exhausted overwhelmed and confused. I'm in southeast Arkansas and our healthcare providers here just aren't helping. It's almost like they all treat her as a lost cause. Well she is alive and very much loved right now! Now I'm rambling...
Our current major issue is with a catheter. It keeps stopping up causing a lot of problems. Just today a urologist said he didn't see patients in wheelchairs. Really?! She was given medication for bladder spasms but she's not having spasms, she's leaking because its stopped up. Her family dr gave her medication that we were later told als patients should never take. It dried her mouth out so bad I thought her als had progressed so fast she was already having trouble swallowing which was devastating. Only to find out it was a side affect to this medication. Anyone's thoughts, advice, or suggestions would be GREATLY appreciated. My husband and I live next door to his parents and I'm a stay at home mom, this allows me to keep a close eye on her and be close by when it's time for her to potty. I'm just to the point of total confusion.
Our current major issue is with a catheter. It keeps stopping up causing a lot of problems. Just today a urologist said he didn't see patients in wheelchairs. Really?! She was given medication for bladder spasms but she's not having spasms, she's leaking because its stopped up. Her family dr gave her medication that we were later told als patients should never take. It dried her mouth out so bad I thought her als had progressed so fast she was already having trouble swallowing which was devastating. Only to find out it was a side affect to this medication. Anyone's thoughts, advice, or suggestions would be GREATLY appreciated. My husband and I live next door to his parents and I'm a stay at home mom, this allows me to keep a close eye on her and be close by when it's time for her to potty. I'm just to the point of total confusion.