AdamB
New member
- Joined
- Dec 11, 2010
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- ny
- City
- merrick
Hello all.
My mother user NewDay, Who posted a few posts on this website. She passed away Sept of 2011. We all miss her.
Just figured i would write. She was a fighter, Lasted almost 20 years with no Vent or feeding tube. She wanted to see her children grow up & believe me she did.
I have been wanting to start an Org in my mothers name, to help supply communication devices to those who have none. That Dynavox device changed my mother life, i would like to help others obtain a device & proper training..
She was strong, she was inspirational, She was a great person. she will be missed.
She wrote a book about ALS, It is on her Dynavox 3100 system, I am having trouble getting it off, any ideas?
here are 2 posts by her
https://www.alsforums.com/forum/people-als-pals/14873-my-letter-als.html
https://www.alsforums.com/forum/people-als-pals/13298-hi-all-i-have-had-als-18-years.html
My mother user NewDay, Who posted a few posts on this website. She passed away Sept of 2011. We all miss her.
Just figured i would write. She was a fighter, Lasted almost 20 years with no Vent or feeding tube. She wanted to see her children grow up & believe me she did.
I have been wanting to start an Org in my mothers name, to help supply communication devices to those who have none. That Dynavox device changed my mother life, i would like to help others obtain a device & proper training..
She was strong, she was inspirational, She was a great person. she will be missed.
She wrote a book about ALS, It is on her Dynavox 3100 system, I am having trouble getting it off, any ideas?
here are 2 posts by her
https://www.alsforums.com/forum/people-als-pals/14873-my-letter-als.html
https://www.alsforums.com/forum/people-als-pals/13298-hi-all-i-have-had-als-18-years.html