fitzroy
Active member
- Joined
- Nov 28, 2011
- Messages
- 99
- Reason
- Learn about ALS
- Country
- AU
- State
- VIC
- City
- Mel
Right, so I can swing a golf club after a fashion on the driving range but I can no longer put on socks, leggings or tights without a Herculean effort. Whatever's happening with me is confusing, confounding and continuous.
The same is becoming true of bottle lids. Not every bottle, but enough times that I've been stumped and having to ask someone else to give it a try. Which they invariably open with comparative ease. Went clothes shopping last week and gave up on anything complex as I was unable to handle the zips and clips. Stretchy clothes feel better anyway. Don't talk to me about fine motor coordination.
My GP has made a recommendation for an occupational therapist. I wouldn't have even considered this two or three months ago. Things aren't dire. I'm able to cope with pretty much everything that's going on but it's becoming a regular and persistent set of symptoms.
I now have an additional doctor in my team for pain management. Didn't want to do it, but another of my doctors pretty much forced it on me. Gabapentin is my 11th med in the current regime. I'm tired of this stuff.
What I'm dreading though is the need to step back into figuring out what's really happening. It's a merry-go-round that is tiring, anxiety and self-doubt inducing with often ambiguous results. I think I need to do it but I'm not looking forward to it, including going back to a neurologist.
Ugh.
The same is becoming true of bottle lids. Not every bottle, but enough times that I've been stumped and having to ask someone else to give it a try. Which they invariably open with comparative ease. Went clothes shopping last week and gave up on anything complex as I was unable to handle the zips and clips. Stretchy clothes feel better anyway. Don't talk to me about fine motor coordination.
My GP has made a recommendation for an occupational therapist. I wouldn't have even considered this two or three months ago. Things aren't dire. I'm able to cope with pretty much everything that's going on but it's becoming a regular and persistent set of symptoms.
I now have an additional doctor in my team for pain management. Didn't want to do it, but another of my doctors pretty much forced it on me. Gabapentin is my 11th med in the current regime. I'm tired of this stuff.
What I'm dreading though is the need to step back into figuring out what's really happening. It's a merry-go-round that is tiring, anxiety and self-doubt inducing with often ambiguous results. I think I need to do it but I'm not looking forward to it, including going back to a neurologist.
Ugh.