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Old 07-20-2012, 01:11 PM #16 (permalink)
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notme notme is offline
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Join Date: 2011
City: Orlando
State: Fl
Country: US
Diagnosed: 08/2011
Interest: I have been diagnosed with ALS.
Posts: 2,663
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notme notme is offline
Extremely Helpful Member
notme's Avatar
Join Date: 2011
City: Orlando
State: Fl
Country: US
Diagnosed: 08/2011
Interest: I have been diagnosed with ALS.
Posts: 2,663
notme is on a distinguished road
Default Re: Fresh Start ...Hopefully

I find that I'm saddened by the responses to threads as of late.

Yes, the majority of the members here have ALS have cared for one with it, or have just been here so long, they belong.

When I first came here, people were nice. We didn't assume everyone was some sort of a scam. Someone mentioned Kell--Allen and I PM'd about our concerns..it was kept off the forums.

While it's possible that this person Healthy/Whoever is having some sort of sick pleasure out of posting, it's much more likely that it is a person that is so anxious about their symptoms that they are posting as two people because as just the "One" they were not getting answers--and wanted to be sure.

We all get to the point that we get tired of answering the same questions. Allen was a huge supporter of tough love. Al was adamant that trolls were ignored. Richard would have closed the duplicate threads with a warning to stick to one thread, or something similar.

I've been less than nice to some folks here when I and many others have said the same thing over and over--eventually, I give up.

But when did this part of the forum become more about the 'attack' and less about the support? This thread was posted by ONE individual-and there are at least 4 others mentioned. It's rude. It's also potentially harmful. We don't KNOW who is behind that screen. We don't know if it's someone who is scamming, someone who is so distraught with their issues that they see no way out--or someone who is just genuinely concerned with strange health concerns.

This is the "Do I have" section. It's specifically for those that wonder. If it bothers you greatly to answer posts here--then simply don't. It's that easy. There isn't a problem with saying "Pick a name" or "You have another thread" but to jump someone that has apologized--is just not right, I don't think.

What if the next person that posts here does have ALS-and while they come here for 'support' they see nothing but bashing of newcomers?

If the only thing we were going to say to folks here is "See your DR" there would be no point for this part of the forum.

To Healthy1-- NO--ALS would be very unlikely to progress as you're thinking. It's not that fast. Clean EMGs means no ALS in almost all cases--especially when there are LMN signs. The "normal" EMG issues with a later discovery of ALS are almost always because it presented with UMN issues only or there were multiple things showing in the tests--such as trapped nerves that changed the result interpretation.

Continue with the anxiety issues--and see if a doctor sees the atrophy you do-if not, try to relax and don't drive yourself nuts.
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