My husband finds the ALS clinic not really helpful any more. It is good in the beginning, as you need equipment and have a lot of questions that all the specialists can answer. We use to go to a well known clinic but the 3 hour drive one way became just too much, now we occasionally go to a closer clinic. since my husband is slow progressing, now we only go about once a year unless we need something. we have a pulmonologist locally because that is important. The rest of the docs don't do alot in my opinion.