I started exhibiting signs ans symptoms of ALS about 18 months ago. Since then my symtoms and signs have continued to worsen. The following has been accomplished:
Clinical exam showing upper and lower signs of ALS.
EMG showing minmal abnormal study, also ruling out other disease.
NCV showing no other disease leaving only ALS.
Physical Therapy Evaluation showing weakness in lower extremities and left side in agreement with diagnosed of prob. ALS.
Speech Therapy assessment showing positive with a diagnosed of ALS.
Lung Function Study showing a positive reduction in agreement with diagnosed of ALS.
MRI showing no cranial or spinal abnormalities for other possible diagnosis leaving only ALS.
Yet the neurologist is not willing to give a definite diagnosed of ALS due to the EMG report being only minimally abnormal. Yet all other testing is positive. I'm now on c-pap and they want to strt me with b-pap.
I have gone from being independent, to using a cane to a walker and electric scooter and I continue to get weaker no longer to walk long distances or stairs.
Has anyone else had this and what was done about it. I have a disability claim pending on the diagnosed being definite and not probable