Hi Judith-the only thing I can say is be careful of the cost. If you think it will help relieve your symptoms and can afford whatever they charge then give it a go. If you are hoping for a cure hold tight. No cure has been discovered yet but reputable hospitals and universities are making progress. If you want to contact one of the major studies to see if they are still accepting patients you might start with a search of past threads on this forum.
Sorry things do not look more hopeful. Regards, Cindy