mookyred
Active member
- Joined
- Jul 23, 2006
- Messages
- 76
- Reason
- DX UMND/PLS
- Diagnosis
- 01/2007
- Country
- US
- State
- Florida and Pennsylvania
- City
- Davenport and Harrisburg
I read a post of yours and you said you had the tin man effect. I had that too for a couple of years. I'd startle and body would go rigid and I would fall with no bending. What helped me was physical therapy and diazapam. I would not take baclofen, not that I'm telling you not to take it, but diazapam stopped that tin man effect. Actually, you can take both. However, I would think you'd have to reduced some of the baclofen. If I don't take diazapam, the tin man will come back.
The reason I finally insisted on it was the fact that at one point they thought I had stiffpersons syndrome, which the tin man effect is common symptom. Diazapam is the ONLY treatment for Stiffperson's syndrome. Well, I took it and am up to 3mg's 3 times a day. My spasticity at present time is not that bad. It is the only medication I take. I go to an ALS clinic and would not agree to baclofen, so comprised with diazapam. It and physical therapy were life savers for me....no more tin man. Diazapam and PT = much improved me!
The reason I finally insisted on it was the fact that at one point they thought I had stiffpersons syndrome, which the tin man effect is common symptom. Diazapam is the ONLY treatment for Stiffperson's syndrome. Well, I took it and am up to 3mg's 3 times a day. My spasticity at present time is not that bad. It is the only medication I take. I go to an ALS clinic and would not agree to baclofen, so comprised with diazapam. It and physical therapy were life savers for me....no more tin man. Diazapam and PT = much improved me!