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Old 01-29-2012, 05:49 PM #1 (permalink)
mummy24 mummy24 is offline
New Member
 
Join Date: 2012
City: uk
State: uk
Country: UK
Interest: I am interested in learning about ALS/MND.
Posts: 21
mummy24 is on a distinguished road
mummy24 mummy24 is offline
New Member
Join Date: 2012
City: uk
State: uk
Country: UK
Interest: I am interested in learning about ALS/MND.
Posts: 21
mummy24 is on a distinguished road
Default not good. im scared.

Hi all. This is hard for me...its scary to realise that I may have pls. Im still in denial that something is wrong...i only have mild issues with walking, its not that bad.

I suspected a problem but hoped it was in my head, i could not believe i would have a problem as im only 24 years old. Im a new mummy and have spent the last year devoting my time and energy to my baby.

I've been seen by a neurologist who has told me that i have a progressive condition involving my brain and spinal cord. I did not understand some medical jargon but he found many abnormal signs including spasticity in my legs and its starting in my hands....weakness in my feet and hands. Deformities in my feet, i believe it is called a spastic equinovarus deformity. He found that i have ataxia and my pupils are different sizes too. I also have problems with lack of sensation in my toes.

In my teenage years i started to get clumsy and was terrible at sports. My feet started getting slowly deformed and weaker to the point that it has been hard to get shoes to fit and i cannot wear high heels. I started getting restless legs and cramps..i noticed how weak i felt and how i felt so umbalenced. I even have a weird symptom which i didn't mention to my neurologist...some time in my teens my smile got wonkey, it has stayed slightly wonkey since then has caused slight asymmetry in my face. My vision got worse, going from perfect to short sighted. People made comments as my feet stomped very loudly when i wear certain shoes

Current symptoms:
Spasticity
Weakness
Curled toes and spastic equinovarus feet
Tiredness
Crooked smile
Cold feet
Impossible to wear high heels
Poor posture..struggle to stand up straight
Lose my balence and fall to the side
Mild cramps
Awkward gait
Get tired quickly and cant walk far
Difficulty running
Very thin feet and lower legs
Poor eyesight
Numb toes
Pins and needles
Weak ankles
Pain in hands when they touch something cold
My muscles are very stiff if they get cold
I cant excersize as my muscles are tight and crampy
Mild muscle twiches...could be due to antidepressants.
Go through phases where i drop everything and i cant explain why
Depression
Terrible with using my hands.
weird vision...flashing lights in my eyes and jumpy vision...like I cant see for a second, it goes blurry.

Any of this sound like pls.? Im being tested for hsp and inherited ataxia and they will send me for a scan...presumably to look for lesions etc. My cousin got diagnosed with progressive ms at a young age and she has similar symptoms.


This is very hard. I've gone through post natal depression and anxiety and now this.
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