Sorry you are going through this. Hospice care and his wishes are what should drive this. This will hardfor and RN to deal with, so don't be afraid to reach out to your friends and other family. Try hard not to mourn what is gone (certainly easier said than done). I have been brutally clear to my husband what my wishes are and I am choosing my path. It may be the only choice I have left. Let any of us know what else we can do for you. But every case is clinically destinct so the neurology team will be the best predictors.
Again, so sorry you are here with us.
Holly