lizzie11957
Active member
- Joined
- Nov 7, 2010
- Messages
- 92
- Reason
- PALS
- Diagnosis
- 10/2010
- Country
- US
- State
- Georgia
- City
- Centerville
Hi neighbor! I live right in your backyard, Centerville, GA. I was diagnosed at Emory on October 19, 2010 with Bulbar onset. Emory is a terrific ALS clinic. I'm sure they're not deliberately stalling you. I do know that the RN, Nicole, who typically schedules appointments has been in Australia. She is there, at a conference, advocating for ALS patients. You will find at Emory that their first priority is always the patients. They do everything possible to help you through every moment of the disease. I can email a question and have an answer in a matter of hours. If serious, in a matter of minutes. I feel as though because of their care and diligence, my progression has been much slower. My breathing is still good and I can still walk a mile every day without getting breathless. Keep calling. Ask for Nicole. You may need your doctor to give you a referral. Please email me with any questions or concerns. There is hope. Lots of possible treatments in the works! [email protected]. Also, I'm on Facebook and belong to a site " Ceftriaxone Clinical Study". We'll all get through this together!