polly13
New member
- Joined
- Nov 25, 2011
- Messages
- 8
- Reason
- Learn about ALS
- Country
- IRL
- State
- Kilkenny
- City
- Kilenny
Hi everybody
I have been lurking here for a while and havnt really had the courage to post until now.
My symptoms started about 8 weeks ago, one day I was at work and thought I was slightly slurring my 's' sounds in so far as they sounded a little elongated. I then started to do so some research an of course ended up with Bulbar Onset MND. I went to my doctor who felt I was fine as I didnt have any tongue fasticulations when he looked at my tongue (thats all he did though).
After than appointment - I looked at my tongue constantly for about 3 weeks and it twitched every time, however I dont believe it twitches when it is rested in my mouth. I dont know what atrophy looks like but I definately have teeth marks on my tongue but I dont think that is a sign of atrophy from what I have read. There is a dent on one side of tongue but I have no idea how long it is there. When I stick my tongue out it doesnt deviate to one side, but if I put my mouth around i, it deviates at the dent (kind of bends) - this is at the tip.
I think my speech is getting worse (my husband tells me that I am speaking like I always do but I dont think so) my s sounds are very elongated and also if I say words with 'ts' or 'Ls' it kind of feels that my tongue is hitting off the top of my mouth and words are not coming out correctly. This happens a few times a day at this stage. If I speak for any period of time at all my tongue feels tired - underneath where it is attached, that muscle starts to feel tired or hurt a little I guess I am not sure what the exact feeling is.
I am also really anxious about this and of course I realise that could be exacerbating the problem greatly, my rational mind is telling that I am fine but it is also telling me that there's not a whole lot else that could be causing my speech issues. Initially I thought it was a yeast infection in my mouth but that has cleared up, my tongue feels big in my mouth so I dont know if it is enlarged or if I am just concious of it being there 24/7. My mouth is also a little dry. I am 38 years old and have three kids and I suppose the thoughts that this could be something like MND is making my anxiety a lot worse.
My question like so many other people on here - does this sound like Bulbar onset MND and what are the usual signs in relation to speech being a little off.
Many thanks for reading this.
I have been lurking here for a while and havnt really had the courage to post until now.
My symptoms started about 8 weeks ago, one day I was at work and thought I was slightly slurring my 's' sounds in so far as they sounded a little elongated. I then started to do so some research an of course ended up with Bulbar Onset MND. I went to my doctor who felt I was fine as I didnt have any tongue fasticulations when he looked at my tongue (thats all he did though).
After than appointment - I looked at my tongue constantly for about 3 weeks and it twitched every time, however I dont believe it twitches when it is rested in my mouth. I dont know what atrophy looks like but I definately have teeth marks on my tongue but I dont think that is a sign of atrophy from what I have read. There is a dent on one side of tongue but I have no idea how long it is there. When I stick my tongue out it doesnt deviate to one side, but if I put my mouth around i, it deviates at the dent (kind of bends) - this is at the tip.
I think my speech is getting worse (my husband tells me that I am speaking like I always do but I dont think so) my s sounds are very elongated and also if I say words with 'ts' or 'Ls' it kind of feels that my tongue is hitting off the top of my mouth and words are not coming out correctly. This happens a few times a day at this stage. If I speak for any period of time at all my tongue feels tired - underneath where it is attached, that muscle starts to feel tired or hurt a little I guess I am not sure what the exact feeling is.
I am also really anxious about this and of course I realise that could be exacerbating the problem greatly, my rational mind is telling that I am fine but it is also telling me that there's not a whole lot else that could be causing my speech issues. Initially I thought it was a yeast infection in my mouth but that has cleared up, my tongue feels big in my mouth so I dont know if it is enlarged or if I am just concious of it being there 24/7. My mouth is also a little dry. I am 38 years old and have three kids and I suppose the thoughts that this could be something like MND is making my anxiety a lot worse.
My question like so many other people on here - does this sound like Bulbar onset MND and what are the usual signs in relation to speech being a little off.
Many thanks for reading this.