Hello, sorry to bother yall, I have posted a couple of questions this past week, as I am currently being evaluated/worked up for a smorgous board of issues, I have my university neuromuscular appointment on Jan 2nd, and just started seeing another neuromuscular specialist in the meantime.. I have kind of a strange history the past 8 months or so, hwoever I was curious about well lots of things, but one thing -
One of my first symptoms of this whole thing happening was waking up with dry gritty eyes, that were red- i assumed post partum hyperthyroid with my other symptoms going on, but it wasn't ... anyhow My eyelids don't close when I sleep now for months.. I have twitching in my face and tongue... and my right eyelid has been twitching after every single time I blink for almost 3 months now.. and it closes even less than the right one.. Is that even something that happens in ALS/MND? Do people get to a point where they have to tape their eyelids closed? All my serum MG tests have come back normal , and I dont have droopy eyelids, though they have seemed to change shape a bit- I attributed this to being up with a newborn and being tired, Anyhow I was just curious if eyelids are even affected like that.. Thanks again for any advice and your time in advance, I greatly appreciate it
One of my first symptoms of this whole thing happening was waking up with dry gritty eyes, that were red- i assumed post partum hyperthyroid with my other symptoms going on, but it wasn't ... anyhow My eyelids don't close when I sleep now for months.. I have twitching in my face and tongue... and my right eyelid has been twitching after every single time I blink for almost 3 months now.. and it closes even less than the right one.. Is that even something that happens in ALS/MND? Do people get to a point where they have to tape their eyelids closed? All my serum MG tests have come back normal , and I dont have droopy eyelids, though they have seemed to change shape a bit- I attributed this to being up with a newborn and being tired, Anyhow I was just curious if eyelids are even affected like that.. Thanks again for any advice and your time in advance, I greatly appreciate it