kmendsley
Distinguished member
- Joined
- Feb 19, 2010
- Messages
- 434
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Highland
First off...I have no idea where to post anymore....so I find more often than not lately I have not posted at all. I have been diagnosed, so technically I am a pals, but I am still getting really extreme genetic rare disease testing to see if it could be 'anything else'.
Anywho..that is one predicament here is the other. Insurance sucks. Anyway, you all knew that. But finally I have gotten back to a PT who has agreed that I am a bad walker and is trying his best to keep me 'safely walking' which is coming to a close here soon, before assistive needs.
Ok, I walk but it looks horrible. Looks like I am a baby trying to take its first steps, all wobbly, can't go in a straight direction, and using whatever may be near by to hold on to :mrgreen: THis is on a good day.
Today is a bad day...ok very bad as far as walking goes...because well I can't. I did a lot yesterday as it was halloween and we do a haunted house. I stood, walked way more than I should of...I tried to conserve energy but ya know...got caught up in the excitement of it all. Today, I can't walk. Got out of bed and was that surprised when I realized my legs had given up and I was on the floor!
So I slithered like I snake...down the stairs...scooting along..thinking one thing...if I can't walk I want to be able to watch t.v. (Ok, thinking obviously out of whack on this one but whatever...I made it down the stairs and to the couch.)
Since then I have tried standing up and down and I can do it for maybe 10 seconds and then fall back down. I believe my legs are just so fatigued from yesterday that is is a good movie couch potato day till my legs start to ...um function again....I hope.
Anyway, who knows where I am going with this, I forgot about 5 minutes ago when I started typing :?: But, if I am unable to get up tomorrow...should I be contacting some dr. or something to get something so I can walk or get around? This may sound absoultely ridiculous...and I am not sure of anything anymore so if you have some advice for me that would be good. Also, if I am in need of lets say getting a wheelchair 'immediately' does anyone have some good advice/where I can get it...blah blah on this. Thanks
Anywho..that is one predicament here is the other. Insurance sucks. Anyway, you all knew that. But finally I have gotten back to a PT who has agreed that I am a bad walker and is trying his best to keep me 'safely walking' which is coming to a close here soon, before assistive needs.
Ok, I walk but it looks horrible. Looks like I am a baby trying to take its first steps, all wobbly, can't go in a straight direction, and using whatever may be near by to hold on to :mrgreen: THis is on a good day.
Today is a bad day...ok very bad as far as walking goes...because well I can't. I did a lot yesterday as it was halloween and we do a haunted house. I stood, walked way more than I should of...I tried to conserve energy but ya know...got caught up in the excitement of it all. Today, I can't walk. Got out of bed and was that surprised when I realized my legs had given up and I was on the floor!
So I slithered like I snake...down the stairs...scooting along..thinking one thing...if I can't walk I want to be able to watch t.v. (Ok, thinking obviously out of whack on this one but whatever...I made it down the stairs and to the couch.)
Since then I have tried standing up and down and I can do it for maybe 10 seconds and then fall back down. I believe my legs are just so fatigued from yesterday that is is a good movie couch potato day till my legs start to ...um function again....I hope.
Anyway, who knows where I am going with this, I forgot about 5 minutes ago when I started typing :?: But, if I am unable to get up tomorrow...should I be contacting some dr. or something to get something so I can walk or get around? This may sound absoultely ridiculous...and I am not sure of anything anymore so if you have some advice for me that would be good. Also, if I am in need of lets say getting a wheelchair 'immediately' does anyone have some good advice/where I can get it...blah blah on this. Thanks