Mahealani
Active member
- Joined
- Nov 24, 2008
- Messages
- 56
- Reason
- PALS
- Diagnosis
- 09/2008
- Country
- US
- State
- HI
- City
- Hilo
I have limb onset since 2008, can't move arms or legs. Can still sit in recliner but neck is getting weak. I got a PEG in December 2010 and I lost my voice except for some groaning. Drooling is out of control and I'm taking Sal-Tropine to help control it. HOW DO PALS SLEEP WITHOUT CHOKING? I sleep on my back with my head turned to the right so I won't choke. I'm having mouth spasms, yawns and bite down hard. I'm having a hard time not choking after liquids. I have lost a lot of weight. Any advice to help? I have a hospital bed but can't use it because I choke if I'm on my back. I have baclofen but don't use it because I don't want my good muscles to get weak. A Trach has been mentioned but I'm not sure if I want it. Let me know any suggestions.
Mahealani
Mahealani