Pandora
Distinguished member
- Joined
- Apr 30, 2011
- Messages
- 130
- Reason
- Lost a loved one
- Diagnosis
- 01/2011
- Country
- US
- State
- Texas
- City
- Crowley
Hubby had a "issue" this Saturday. He told me that he wanted to go to his chair and sit in teh livingroom for a while, to get a change of senery. No problem. I put him in his chair, and made sure he had everyhthing he needed. His father came in the room and they were watching TV. I took the "free" time that gave me to take a shower and do somethinsg for myself. After the shower I went to check on him just cuz i had that little feeling, and I find, he is passed out, eye fixed and dialited, and not breathing. I freaked out. I threw his chair back and opened an air way was going to do CPR when he came around. His father just sat there and when i yelled at him to call 911 he was slow and said he didn't even see what happened. HOW THE HELL are you less then 5 feet away the same room and not notice? :evil: The paramedics came and took him off to teh hospital. This was yet another awful experiance. After 7 hours in the ER we find out that he has a high white cell count, staff, and no reason that he passed out. They admitted him. the next day, I find out that he didn't have staff it was a bad test. Ok, great! but no reason for eth high white cell count. The doctor the we had in admitting, siad they wanted to test him for GBS, and maybe start him on IVIG. They also did a swollow test and he failed, so he didn't get anything to eat from Saturday to monday, this is not OK! I raised some hell and they feed him. A new Doctor is not assigned to his case and refuses to do the GBS test and IVIG. She said we could not afford it, how the hell does she know what we can afford, and I didn't know that medical care was baised on what teh doctor thought you could afford. GRRRRRRRR! I had asked to be transfered to a hospital in Dallas, that has a clinic ajoined to the ALS/MDA... UTSW refused the transfer. Said they could not take him as out pat. Well how help is that, when I can't put him in his chair cuz he may pass out again? or let alone I do not have a van that I can transport him in myself. We find out he has 3 buldging discs in his back and he has had pain from that for years, but they are saying they can't tell if it is the ALS that is giving him the pain or the discs. I can tell you its the disc but who am I, Im not a Doctor, just teh person who has spent the last 10 years with him and careing for him 24 hours a day for the last year! They told me he might couyld have the disc surgery but they wanted to do some reaserch to make sure the ALS wont affect it. I hate the fact that every doctor blames everything on ALS... ohh your bleeding.. thats ALS, oh you have pain ... thats ALS, ......damnit! I am so sick of it. Why won't they listen, why won't they treat him? why wont they see him not the ALS!