Reef
New member
- Joined
- Jul 11, 2011
- Messages
- 9
- Reason
- CALS
- Diagnosis
- 06/2011
- Country
- US
- State
- FL
- City
- Keys
Hi
My husband has ALS and we are in early stages, he was diagnosed this summer. I am trying to understand and not panic every time something changes.... He has a lot of twitching that seems to travel in different parts of his body. Initial symptoms started in his throat, slurry voice etc. We talk about his symptoms on a daily basis to keep track of what is going on and I am trying to understand if what's happening is common so I was hoping for some input. He has not lost the use of anything yet but is feeling very tired and talks about stiffness in his body. Although he can have twitching all over for the most part it seems to be in specific places. One day it's the left side, next day it's in his core area, other days it's right side or more in the hands. It seems to be traveling through his body.
Does anyone think that drinking caffeine or being more active causes more twitching?
What exactly does the twitching mean? Does massage help? Is there any advice, tips, tricks?
I thank you in advance and admire you endlessly with how generous you all are with information for us newbies in the group!
My husband has ALS and we are in early stages, he was diagnosed this summer. I am trying to understand and not panic every time something changes.... He has a lot of twitching that seems to travel in different parts of his body. Initial symptoms started in his throat, slurry voice etc. We talk about his symptoms on a daily basis to keep track of what is going on and I am trying to understand if what's happening is common so I was hoping for some input. He has not lost the use of anything yet but is feeling very tired and talks about stiffness in his body. Although he can have twitching all over for the most part it seems to be in specific places. One day it's the left side, next day it's in his core area, other days it's right side or more in the hands. It seems to be traveling through his body.
Does anyone think that drinking caffeine or being more active causes more twitching?
What exactly does the twitching mean? Does massage help? Is there any advice, tips, tricks?
I thank you in advance and admire you endlessly with how generous you all are with information for us newbies in the group!