Nope, Not a thing. The ALS Neuro from USF said I believe it's ALS, I'm sorry, that's it. He didn't even mention Rilutek. I do like him, and I'm giving him benefit of the doubt because I was so upset.
Also, they can't tell me why half my face, palate and tongue are numb. That is not a symptom of ALS. Last week Bill called and asked why I wasn't offered Rilutek. They are very disorganized. If I go on now, I have to be on for 60 days, that means I'll probably lose my place in the Dexi trial.
If I didn't have this site for reference, I would be lost in the shuffle.
Anyhow, have a great day all!
Joni, Taylor, my maltese kept me up half the night trying to get comfy on my pillow.Plus, he had chicken last night that gives him gas. Lucky me.