Aly, I feel for you, and soon may be drooling with you....you cant taste carrot cake or chocolate chip cookies down a feeding tube. Maybe we should suggest that there be some research on this...transplanting taste buds to ...? lol ha ha ha ha
My doc told me, do not try to diet, but go for the calories....all my life i have been waiting for someone to say this to me....I guess the rational is ALS will eat up the fat first, and leave the muscle for desert?
I tell ya, the only place I am happy is in the present moment...and all day long I bring myself back to it, not to the past which is over, and not to the future...NOW...with my Latte and cookie.
LIZ, who is that with you in your picture? Coofee and a cig...that was my Dad's favorite combo, except I could not believe how much sugar he put in the cup....he went thru the Depression, and there was no sugar...sad thing is Liz, my dad died of enfluezma (sp?) Could not breathe and suffered alot. Oh gosh, that statement is toooo heavy for this thread, sorry! Lighten up Sequoia! Love all of you, you especially Liz!