Hi gang-- gosh I've been away a while, but what a busy few weeks! Been thinking of you all.
Went to Boston to start my dex trial on May 3rd. Helen, we are not on the same schedule! Will have to arrange to meet another way.
Then on May 7 flew to Nebraska for my last professional meeting- mixed feelings there but so glad to see my work buddies, and they had a really nice party for me one night. I managed not to cry during the party, but leaving there on the morning of the 11th completely fell apart.
Then on the 12th an old friend who's a traditional Irish fiddler flew in for a visit and the kick-off of the house-concert series that my brother has cooked up "to surround me with friends and music"; that was on Saturday and I got got be "queen" and enjoy the 100 friends who came (my brother and his wife have quite a mailing list) and a fabulous evening of music and love. Next one, July 23rd.
Next morning my a capella group trouped up here to sing at church, and blessed be, I can still sing even though my talking voice is so bad! They brought a potluck lunch and after they left I took a 4-hour nap
Meanwhile, DH Roy left on a 6-day canoe trip, and we set up a schedule for someone in my extended family to stop in each morning and night. That worked great! My brother drove me to Boston Wednesday for my 2-week check-in on the dexpramipexole trial- it was nice to get to spend the day with him.
So, no big changes since I started the trial except for losing 4 lbs and getting my period for the first time in 8 months-- neither of which I am happy about! Not sure why the weight loss- been eating as much as I can. Yesterday it was starting to come back up (the weight, not the food!)
Kimberly, so happy for you today!
Diane & Helen, watch those falls, and keep the Arnica handyy.
Everyone else, it'll take me a while to catch up. But I've been thinking of you all, every day!
love
Sue