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Old 05-10-2011, 04:45 AM #46 (permalink)
Gusflower Gusflower is offline
Member
 
Join Date: 2010
City: Helsingborg
State: Skåne
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 156
Gusflower is on a distinguished road
Gusflower Gusflower is offline
Member
Join Date: 2010
City: Helsingborg
State: Skåne
Country: SWE
Interest: I am interested in learning about ALS/MND.
Posts: 156
Gusflower is on a distinguished road
Default Re: Misdiagnosing ALS

I have now been taking Doxyferm for two months and stopped two days ago. It has all made things worse. I now have to swallow with my face bent down. I have a neuro appointment tomorrow again. I feel much weaker too and my upper lip keeps shrinking and the red areas are dissapearing. It is horrible. I am sure that this is the Ehrlichia eating away in my brain. It s just that there is nothing I can do to stop it. I went to an ear nose throat specialist who said that there was no risc in eating antibiotics and damaging the neuro functions in the throat. This really sucks. I do not want to be a part of this community, this is meant in a good way of course. I love the caring people here who have inspired hope and given their best tips.
Gusflower is offline