abbas child
Very helpful member
- Joined
- Feb 29, 2008
- Messages
- 2,168
- Reason
- PALS
- Diagnosis
- 07/2007
- Country
- US
- State
- Maryland
- City
- Eastern Shore
Diane, many changes seem to be happening within the forum. I don't think you offended anyone.
I honestly don't know if Hospice will be taking me on! Without a doctor ordering it, insurance won't pay. I feel a bit like Alice in Wonderland, but calm now... What will be will be.
The clinic nurse-coordinator called saying that my ALSA coordinator couldn't make headway with the neuro office either. Just to keep this straight, it was the neuro who told Teri he'd okay hospice for me. Now the clinic nurse is trying to get the pulmonary doc to sign off on hospice...but on Feb 3, my last visit, Phil and he discussed how I'd live for more than 6 months, and therefore won't begin hospice. I realize Phil doesn't like the implications, but his discussion two months ago may have blocked that path. And while I've lost a lot of strength in the last two months, I don't want to go to clinic, where this neuro charges emergency rates to talk about his family the whole time... Sure do wish they'd take my word for it. I don't know how long I have, and neither does the doctor; it's simply the way insurance requires admittance to hospice.
It's 75 here today with 80 forecast for Wednesday, and then dropping again. Wish I could send you some heat, Diane!
My primary care doc sees patients now only on Saturdays...and we had our last conversation in '09.
Breaking news...the Clinic coordinator has the script from the Neuro written last week, and is going to send it to Hospice herself. Ha--and she said their office was "nasty". I could kiss her.
I honestly don't know if Hospice will be taking me on! Without a doctor ordering it, insurance won't pay. I feel a bit like Alice in Wonderland, but calm now... What will be will be.
The clinic nurse-coordinator called saying that my ALSA coordinator couldn't make headway with the neuro office either. Just to keep this straight, it was the neuro who told Teri he'd okay hospice for me. Now the clinic nurse is trying to get the pulmonary doc to sign off on hospice...but on Feb 3, my last visit, Phil and he discussed how I'd live for more than 6 months, and therefore won't begin hospice. I realize Phil doesn't like the implications, but his discussion two months ago may have blocked that path. And while I've lost a lot of strength in the last two months, I don't want to go to clinic, where this neuro charges emergency rates to talk about his family the whole time... Sure do wish they'd take my word for it. I don't know how long I have, and neither does the doctor; it's simply the way insurance requires admittance to hospice.
It's 75 here today with 80 forecast for Wednesday, and then dropping again. Wish I could send you some heat, Diane!
My primary care doc sees patients now only on Saturdays...and we had our last conversation in '09.
Breaking news...the Clinic coordinator has the script from the Neuro written last week, and is going to send it to Hospice herself. Ha--and she said their office was "nasty". I could kiss her.
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The gal that filled out the paperwork to enroll me said they have a doc evaluate me at 60 days and again at 90 days and then can renew me every twop months without a doc's orders. The doctor is a Hospice doctor and not my doctor. I imagine that they are trying to keep people on the program as long as possible -- afterall, it is profitable. 
