Madison1943
Distinguished member
- Joined
- Oct 21, 2009
- Messages
- 162
- Reason
- PALS
- Diagnosis
- 05/2009
- Country
- US
- State
- Wisconsin
- City
- Madison
This stinking disease is so challenging. The hospice nurse told me to elevate my feet becuz they're swollen. So I just took a nap and elevated the feet the whole time. When I put the bed back both my thighs got real heavy and wouldn't move. I'm not doing that again. Have any of you experienced anything like this? I guess it's the blood and fluid draining back down. Hospice nurses are great but they're not ALS experts. Gotta use your head with this crap.
Thanks for any clue.
Carol
Thanks for any clue.
Carol