irismarie
Very helpful member
- Joined
- Nov 21, 2009
- Messages
- 1,386
- Reason
- PALS
- Diagnosis
- 05/2010
- Country
- FR
- State
- tarn et garonne
- City
- valeilles
I hate this disease with all my heart, cry and get depressed and miss my life like mad. But a weird thought has been worming its way into my heart and head lately - that we are experiencing an amazing though terrible happening. We are seeing/feeling our bodies, our lives, all our abilities being stripped from usq; yet our brain is separated from it all so it is like we are privileged in a way to experience a deconstruction in a way that other people never ever will. IT IS HARD TO EXPLAIN THIS HORROR as anything other than that - horror, but this niggling thought persists that we are experiencing something special in a way and getting to inderstand and know so much more in the process.
OK that thought comes when i am about to drift off to sleep and for sure i'd rather live without the "privilege" but who else has a choice of to have a trache or not? we have experienced far more extremes than any other "normal" people
love you all to bits and thank th epowers that be for letting me know you all
OK that thought comes when i am about to drift off to sleep and for sure i'd rather live without the "privilege" but who else has a choice of to have a trache or not? we have experienced far more extremes than any other "normal" people
love you all to bits and thank th epowers that be for letting me know you all