nsmith555
Active member
- Joined
- Feb 27, 2007
- Messages
- 67
- Reason
- Loved one DX
- Diagnosis
- 03/2007
- Country
- US
- State
- OK
- City
- Guthrie
Hello to all who may read this,
Well, today at my mom's neuro visit, he thought she needs to undergo the EMG - which she agreed to (March 22). He also suggested she begin to see a pulmonologist as she is experiencing some breathing difficulty at night and, as he explained, if she ultimately is diagnosed with ALS, there are going to be respiratory issues which will need to be addressed - basically, to what lengths is she willing to go.
He wasn't able to provide much help with her drooling problem - the only med he discussed (and I can't remember the name) had as a contraindication making muscles weak, which he did not want to do, so he didn't want to give it to her. Does anyone have any suggestions in this area?
She swears she has no issues with her limbs. Does anyone know generally the progression of bulbar onset ALS? How long is it usually until extremities are affected? Does anyone know of a case of bulbar onset ALS which never did affect the extremities? I can't find any internet research on that.
Sorry so many questions when we don't even have a true diagnosis. I just want to be prepared. I hope you understand.
Thanks in advance for any help!
Nicki
Well, today at my mom's neuro visit, he thought she needs to undergo the EMG - which she agreed to (March 22). He also suggested she begin to see a pulmonologist as she is experiencing some breathing difficulty at night and, as he explained, if she ultimately is diagnosed with ALS, there are going to be respiratory issues which will need to be addressed - basically, to what lengths is she willing to go.
He wasn't able to provide much help with her drooling problem - the only med he discussed (and I can't remember the name) had as a contraindication making muscles weak, which he did not want to do, so he didn't want to give it to her. Does anyone have any suggestions in this area?
She swears she has no issues with her limbs. Does anyone know generally the progression of bulbar onset ALS? How long is it usually until extremities are affected? Does anyone know of a case of bulbar onset ALS which never did affect the extremities? I can't find any internet research on that.
Sorry so many questions when we don't even have a true diagnosis. I just want to be prepared. I hope you understand.
Thanks in advance for any help!
Nicki